The MRCT Center is a research and policy center that aims to improve the integrity, safety and rigor of global clinical trials.
You can find out more about the organization here.
As a result, in April 2018, the MRCT Center convened a workgroup of diverse stakeholders, to develop tools and resources that support adopting and implementing health literacy principles at all points of the clinical research life cycle.
We welcome your input and recommendations of additional resources that support health literacy integration into clinical research. Please email us at mrct@bwh.harvard.edu to submit your comment
To our knowledge there are no health literacy initiatives that focus on integrating health literacy concepts, techniques and best practices into all clinical research communications and interactions.
Project Leadership
- Sylvia Baedorf Kassis, MPH. Program Manager, MRCT Center
- Barbara E. Bierer, MD. Faculty Director, MRCT Center
- Laurie Myers, MBA. Global Health Literacy Director, Merck (MSD)
- Christopher Trudeau, JD. Associate Professor, University of Arkansas for Medical Sciences, Translational Research Institute
- Sarah White, MPH. Executive Director, MRCT Center
Web Development: Lisa Murray, MPH
Current and Past Workgroup Members
| Last Name | First Name | Affiliation |
|---|---|---|
| Ancker, MPH, PhD | Jessica | Weil Cornell Medical College |
| Andresen, DNP, RN | May-Lynn | QHC Advisory Group |
| Apostolaros, JD, PharmD, MS, FASCP, CCEP | Maria | PhRMA |
| Bahador, MS | Behtash | Center for Information & Study on Clinical Research Participation (CISCRP) |
| Bakken, RN, PhD, FAAN, FACMI | Suzanne | Columbia University |
| Ben-Arieh, JD, MPH | Amy | The Fenway Institute |
| Benevides, PhD, MS, OTR/L | Teal | Augusta University |
| Berk, MPH | Sarah | THE MICHAEL J. FOX FOUNDATION FOR PARKINSON’S RESEARCH |
| Chablani | Poorvi | Biogen |
| Dandora, JD | Reetu | Merck |
| Devins, DrPH | Theresa R. | Boehringer Ingelheim Pharmaceuticals, Inc. |
| Duhig, PhD | James (Jay) | AbbVie Inc |
| Foster | Claire | Amgen |
| Gordon, MPH, PhD | Valery | NCATS/NIH |
| Hall RN, BSN | Lori | Lilly |
| Hallinan | Zachary | CTTI |
| Hastings | Tara | MJFox Foundation |
| Jenkins | Renee | National Urban League |
| Johnson, MPH | Rebecca | IQVIA |
| Leventhal, MBA | David | Pfizer |
| Lory, CAS, BCCS | Becca | Live Positively Autistic, Spectrumly Speaking |
| McEllwee, PharmD, MSPH | Newell | Boehringer Ingelheim Pharmaceuticals, Inc. |
| McNair, MBA | Jill | Center for Information & Study on Clinical Research Participation (CISCRP) |
| Muir | JoAnn | Novartis |
| Neault, PhD | Marilyn | People with Parkinson's Advisory Council and the Parkinson's Foundation |
| O'Leary, PhD, LMSW | Catina | Health Literacy Media |
| Paasche-Orlow MD, MA, MPH | Michael K. | Boston University School of Medicine |
| Palladino Kim, MS | Lisa | Rutgers, The State University of New Jersey School of Health Professions |
| Pierce, MS | Robyn | Amgen |
| Pigozzi, PhD | Laura | Northwestern University |
| Rankovic, MEd, CIP | Margaret | CITI Program |
| Roary, PhD | Mary | NIH |
| Roberts | Dominic (Nik) | Parkinson's Foundation |
| Rothwell, PhD | Erin | University of Utah |
| Roy Chowdhury, M.Pharm, MBA | Anirban | independent consultant |
| Scanlon | Jennifer | Northwell Health |
| Simonds, ScD | Vanessa | Montana State University |
| Scott, LSW | Louise | Arkansas Minority Health Commission |
| Smith, MBA | Rhonda | Breast Cancer Partner |
| Spiegel | Kathy | Amgen |
| Turcotte | Elizabeth | BMS |
| Valencia, PhD | Jessica | Novartis, Patient Engagement and Advocacy |
| Villaire, MSLM | Michael | Institute for Healthcare Advancement |
| Waligora, PhD | Marcin | Jagiellonian University Medical College, Poland |
| Walker | Desiree | Desiree's Walk |
| Weitz, MA | Michele | Clovis Oncology |
| Willis, MD, MPH | Earnestine | Medical College of Wisconsin |
MRCT Center would like to express thanks to the Institute for Healthcare Advancement for their health literacy review of the site.