About This Work

The MRCT Center is a research and policy center that aims to improve the integrity, safety and rigor of global clinical trials.

You can find out more about the organization here.

health literacy framework

As a result, in April 2018, the MRCT Center convened a workgroup of diverse stakeholders, to develop tools and resources that support adopting and implementing health literacy principles at all points of the clinical research life cycle.

We welcome your input and recommendations of additional resources that support health literacy integration into clinical research.  Please email us at mrct@bwh.harvard.edu to submit your comment

To our knowledge there are no health literacy initiatives that focus on integrating health literacy concepts, techniques and best practices into all clinical research communications and interactions.

Project Leadership

  • Sylvia Baedorf Kassis, MPH. Program Manager, MRCT Center
  • Barbara E. Bierer, MD. Faculty Director, MRCT Center
  • Laurie Myers, MBA. Global Health Literacy Director, Merck (MSD)
  • Christopher Trudeau, JD. Associate Professor, University of Arkansas for Medical Sciences, Translational Research Institute
  • Sarah White, MPH. Executive Director, MRCT Center

Web Development: Lisa Murray, MPH

Current and Past Workgroup Members

Last NameFirst NameAffiliation
Ancker, MPH, PhDJessicaWeil Cornell Medical College
Andresen, DNP, RNMay-LynnQHC Advisory Group
Apostolaros, JD, PharmD, MS, FASCP, CCEPMariaPhRMA
Bahador, MSBehtashCenter for Information & Study on Clinical Research Participation (CISCRP)
Bakken, RN, PhD, FAAN, FACMISuzanneColumbia University
Ben-Arieh, JD, MPHAmyThe Fenway Institute
Benevides, PhD, MS, OTR/LTealAugusta University
Berk, MPHSarahTHE MICHAEL J. FOX FOUNDATION FOR PARKINSON’S RESEARCH
ChablaniPoorviBiogen
Dandora, JDReetuMerck
Devins, DrPHTheresa R.Boehringer Ingelheim Pharmaceuticals, Inc.
Duhig, PhDJames (Jay)AbbVie Inc
FosterClaireAmgen
Gordon, MPH, PhDValeryNCATS/NIH
Hall RN, BSNLoriLilly
HallinanZacharyCTTI
HastingsTaraMJFox Foundation
JenkinsReneeNational Urban League
Johnson, MPHRebeccaIQVIA
Leventhal, MBADavidPfizer
Lory, CAS, BCCSBeccaLive Positively Autistic, Spectrumly Speaking
McEllwee, PharmD, MSPHNewellBoehringer Ingelheim Pharmaceuticals, Inc.
McNair, MBAJillCenter for Information & Study on Clinical Research Participation (CISCRP)
MuirJoAnnNovartis
Neault, PhDMarilynPeople with Parkinson's Advisory Council and the Parkinson's Foundation
O'Leary, PhD, LMSWCatinaHealth Literacy Media
Paasche-Orlow MD, MA, MPHMichael K.Boston University School of Medicine
Palladino Kim, MSLisaRutgers, The State University of New Jersey
School of Health Professions
Pierce, MSRobynAmgen
Pigozzi, PhDLauraNorthwestern University
Rankovic, MEd, CIPMargaretCITI Program
Roary, PhDMaryNIH
RobertsDominic (Nik)Parkinson's Foundation
Rothwell, PhDErinUniversity of Utah
Roy Chowdhury, M.Pharm, MBAAnirbanindependent consultant
ScanlonJenniferNorthwell Health
Simonds, ScDVanessaMontana State University
Scott, LSWLouiseArkansas Minority Health Commission
Smith, MBARhondaBreast Cancer Partner
SpiegelKathyAmgen
TurcotteElizabethBMS
Valencia, PhDJessicaNovartis, Patient Engagement and Advocacy
Villaire, MSLMMichaelInstitute for Healthcare Advancement
Waligora, PhDMarcinJagiellonian University Medical College, Poland
WalkerDesireeDesiree's Walk
Weitz, MAMicheleClovis Oncology
Willis, MD, MPHEarnestineMedical College of Wisconsin

IHA logoMRCT Center would like to express thanks to the Institute for Healthcare Advancement for their health literacy review of the site.

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