Publication
Published on: July 13, 2018
Published in: Journal of Medical Internet Research

Presented on: June 30, 2022
Presented at: MRCT Center webinar and public launch, “Equity by Design (EbD) in Clinical Research: The EbD Metrics Framework”
Dr. Barbara E. Bierer moderated this webinar, in which MRCT Center Program Manager Dr. Willyanne DeCormier Plosky introduced the background and structure of EbD Metrics Framework and panelists Yasmeen Long (Faster Cures, Milken Institute) and Dr. Rodrigo Garcia (PPD, Thermo Fisher Scientific) discussed their experiences in testing and utilizing it.
The EbD Metrics Framework is a tool developed by the MRCT Center in collaboration with colleagues from professional, trade, academic, regulatory, and patient advocacy organizations. It is designed to advance organizational diversity, equity, and inclusion (DEI) efforts; orient users toward potential entry and follow-up strategies; and provide guidepost measures for assessing and reporting on progress. To access the tool, please visit the EbD Metrics Framework page.
Presented on: June 2022
Presented at: Advancing International Pediatric Clinical Research webinar series: Assent and Consent in the Field: Culture, Context, and Respect
The third conference in the series, “Assent and consent in the field: culture, context, and respect,” focused on the cultural context of assent and the challenges and solutions encountered on the ground. The 2-hour agenda featured a moderated panel of experts who shared their experiences with assent around the world, including how to manage the tension between an (ideal) ethical framework and cultural context. The webinar was hosted twice on 28 June 2022 at 9-11 am EDT & 29 June 2022 at 8-10 pm EDT with similar content but different speakers and panelists, to allow for wide attendance and global participation.
Informing the Future from COVID-19 Lessons Learned
Time To Listen: Hearing From Young People in Clinical Research
Presented on: June 23, 2022
Presented at: MRCT Center webinar and public launch, “Supporting IRB Efforts to Advance Diversity and Inclusion in Clinical Research”
Does the IRB play a role in addressing the problem of diversity, inclusion, and equity in clinical research? It is true that the need for change must be systemic and embraced at all levels of the clinical research enterprise, and while IRBs are not the primary driver for assuring diversity, inclusion, and equity in clinical research, IRBs can and should serve as a checkpoint for reviewing research for the principles of DEI. This webinar introduced tools and resources created for IRBs and HRPPs to help drive the change.
Presented on: June 14, 2022
Presented at: MRCT Center webinar and public launch
The IRB can play an important role in championing the creation of research materials for participants that are clear and understandable. Please join us as we launch a new online Health Literacy training for IRB members and staff. The webinar launch will review health literacy concepts and introduce the online training which is designed to be a self-paced opportunity to learn and apply health literacy principles to the IRB role. The training also offers a facilitation guide to support continued conversations with colleagues about how to implement lessons learned.
Published on: June 2022
Developed by: MRCT Center Return of Individual Results Task Force
Additional Resources, maintained on our project specific website:
Return of Individual Research Results
Published on: June 2022
Developed by: MRCT Center Return of Individual Results Task Force
Additional Resources, maintained on our project specific website:
Return of Individual Research Results
Published on: June 2022
Developed by: MRCT Center Return of Individual Results Task Force
Additional Resources, maintained on our project specific
Return of Individual Research Results website: