Released on: March, 2022
The Proceedings from the National Academies of Science, Engineering and Medicine (NASEM) workshop “Adoption of Health Literacy Best Practices to Enhance Clinical Research and Community Participation” were released in March. Barbara Bierer, M.D, Elizabeth Cahn, Ph.D., and Sylvia Baedorf Kassis, M.P.H., are featured.
Released on: March 2022
Developed by: MRCT Center Bioethics Collaborative
Released on: February 4, 2022
Published in: Institute for Healthcare Advancement (IHA) blog
Presented on: February 2, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Time to Listen—Hearing from young people in clinical research.
Description: Dr. Gianna “Gigi” McMillan, an academic bioethicist and MRCT Center pediatrics project member, recorded in-depth interviews with three young people from India, Spain, and the US to create this 2-part video series, Time to Listen.
Part 1: Young people share their experience in clinical research, including: what it is like when a doctor or researcher talks to them as a child or adolescent; the best ways to give children and adolescents information; and what the children and adolescents want the adults to know.
Presented on: February 2, 2022
Presented at: Advancing International Pediatric Clinical Research webinar series: Assent and Consent in the Field: Culture, Context, and Respect
The second conference in the series, “Time to Listen: Hearing from Young People in Clinical Research,” focused on the perspectives of young people and the adults who care for them in clinical research and product development. The two hour webinar featured a moderated panel and was hosted twice, from 9-11 am EST and 8-10 pm EST, with similar content but different speakers and panelists, to allow for wide attendance and global participation.
Informing the Future from COVID-19 Lessons Learned
Assent and Consent in the Field: Culture, Context, and Respect
Released on: January 31, 2022
Published in: Journal of Clinical and Translational Science
Presented on: December 15, 2021
Published on: The Hastings Report
Presented on: November 17, 2021
Presented at: PRIM&R’s 2021 Advancing Ethical Research Conference and Social, Behavioral, and Educational Conference (AER21/SBER21)
Released on: November 17, 2021
Published in: PRIM&R’s 2021 Advancing Ethical Research Conference and Social, Behavioral, and Educational Conference (AER21/SBER21)
