Tools
Developed on: June 2023
Developed by: MRCT Center Pediatrics Workgroup, translated by the King Hussein Cancer Center
Focus Area: Patients & Participants
Time to Listen: Hearing from Young People in Clinical Research – PART 2
Video
Presented on: March 21, 2023
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Time to Listen—Hearing from young people in clinical research
Description: Dr. Gianna “Gigi” McMillan, an academic bioethicist and MRCT Center pediatrics project member, recorded in-depth interviews with three young people from India, Spain, and the US to create this 2-part video series, Time to Listen.
Part 2: Young people respond after watching adults discuss the goal of elevating their perspective at an international webinar.
Themes:
- recognizing the power imbalance
- validating young people’s opinions
- creating a “safe space” to share
- reiterating the importance of young people in clinical research.
Covid-19 Clinical Research Flyers: I am Making Decisions on Behalf of a Patient with COVID-19
Flyer / Tools
Developed on: October 2020
Developed by: MRCT Center Health Literacy Workgroup
Related Resources
Protecting the Vulnerable and Including the Under-Represented
Publication
Published on: December 7, 2022
Published in: Journal of Empirical Research on Human Research Ethics
Published recently in the Journal of Empirical Research on Human Research Ethics, Luke Gelinas, David Strauss, Hayat Ahmed, Barbara Bierer, and others co-authored an article entitled, “Protecting the Vulnerable and Including the Under-Represented: IRB Practices and Attitudes.” A pilot national survey of IRB Chairs was conducted to assess attitudes and practices with regard to protecting the vulnerable and including under-represented groups in research.
Return of Individual Research Results Resources: Resources for Participants
Tools
Published on: June 2022
Developed by: MRCT Center Return of Individual Results Task Force
Related Resources
Additional Resources, maintained on our project specific
Return of Individual Research Results website:
IRB Approval Checklist for Returning IRR
Healthcare Provider Contact Form Template
Health Literacy Resources by Role: Participants and Public: Research Participants’ Bill of Rights
Toolkit
Published on: October 2019
Developed by: MRCT Center Health Literacy Workgroup
Related Resources
Additional Resources, maintained on our project specific
Health Literacy website:
Covid-19 Clinical Research Flyers: I am Healthy: Should I Join a COVID-19 Research Study?
Flyer / Tools
Developed on: October 2020
Developed by: MRCT Center Health Literacy Workgroup
Español
Urdu
Related Resources
Covid-19 Clinical Research Flyers: I am a Healthy Child: Should I Join a COVID-19 Research Study?
Flyer / Tools
Developed on: October 2020
Developed by: MRCT Center Health Literacy Workgroup
Español
Urdu
Related Resources
Covid-19 Clinical Research Flyers: I am Sick with COVID-19: Should I Join a COVID-19 Research Study?
Flyer / Tools
Developed on: October 2020
Developed by: MRCT Center Health Literacy Workgroup
Español
Urdu
Related Resources
Covid-19 Clinical Research Flyers: My Child has COVID-19: Should they Join a COVID-19 Research Study?
Flyer / Tools
Developed on: October 2020
Developed by: MRCT Center Health Literacy Workgroup