Description: Dr. Gianna “Gigi” McMillan, an academic bioethicist and MRCT Center pediatrics project member, recorded in-depth interviews with three young people from India, Spain, and the US to create this 2-part video series, Time to Listen.
Part 2: Young people respond after watching adults discuss the goal of elevating their perspective at an international webinar.
Themes:
recognizing the power imbalance
validating young people’s opinions
creating a “safe space” to share
reiterating the importance of young people in clinical research.
Published in: Journal of Empirical Research on Human Research Ethics
Published recently in the Journal of Empirical Research on Human Research Ethics, Luke Gelinas, David Strauss, Hayat Ahmed, Barbara Bierer, and others co-authored an article entitled, “Protecting the Vulnerable and Including the Under-Represented: IRB Practices and Attitudes.” A pilot national survey of IRB Chairs was conducted to assess attitudes and practices with regard to protecting the vulnerable and including under-represented groups in research.
