CLINICAL TRIALS & RESEARCH
Resources

Designing Impactful Informed Consent Processes that Empower Participants

Webinar

Presented on: October 10, 2024

Description: This informative webinar leverages experience from the Office of Human Research Protections, the All of Us Research Program, and the MRCT Center to highlight resources and approaches for communicating informed consent information in innovative, participant-centered ways that support empowered decision-making.   

The moderator, Sylvia Baedorf Kassis, joins the panelists, Marianna Azar of the Office for Human Research Protections and Katherine Blizinsky from the All of Us Research Program. 

Key Topics:

Related Resources

Webinar Q&A

Speaker Biographies

https://mrctcenter.org/project/aggregate-results/

https://mrctcenter.org/health-literacy/

https://mrctcenter.org/health-literacy/instructional-resources/overview/irb/

https://mrctcenter.org/resources/covid-19-clinical-research-flyer/

https://mrctcenter.org/glossary/

https://www.hhs.gov/ohrp/education-and-outreach/human-research-protection-training/participant-centered-informed-consent-training/index.html

https://www.hhs.gov/ohrp/education-and-outreach/online-education/videos/index.html

https://www.hhs.gov/ohrp/education-and-outreach/luminaries-lecture-series/index.html

https://www.hhs.gov/ohrp/regulations-and-policy/guidance/informed-consent/index.html

https://www.hhs.gov/ohrp/regulations-and-policy/guidance/faq/informed-consent/index.html

https://www.allof-us.org/Roadmap   

www.allofus.nih.gov/about/who-we-are/all-us-participant-partners

www.allofus.nih.gov/about/protocol/all-us-consent-process

Session 2: Creating and Sharing Plain Language Summaries: One Team’s Experience  

Session 3: Designing PowerPoint Presentations to Support Health Literacy and Accessibility 

https://mrctcenter.org/mrct-center-annual-symposium/