Public Comments
Comments provided on: January 17, 2019
Comments provided to: U.S. Department of Health and Human Services (HHS), Washington, DC,
Comments provided on: January 17, 2019
Comments provided to: U.S. Department of Health and Human Services (HHS), Washington, DC,
Published on: May, 2023
Published in: Social Science & Medicine
Description: As data sharing is expanded in the context of greater community engagement in research, we must ask to whom do benefits of data sharing accrue and to whom do benefits not accrue? In an era of growing efforts to engage diverse communities in research, the impact of data sharing for all research participants and the communities that they represent requires the reassessment of the principles of data sharing, incorporating principles of community-engaged research. This article outlines these considerations and proposes new models of benefit sharing.
Presented on: May 19, 2013
Presented at: Workshops at the Society for Clinical Trials Annual Meeting, Boston
Released on: December 6, 2017
Developed by: MRCT Center Return of Aggregate Results Workgroup
Published on: December 7, 2017
Developed by: MRCT Center Return of Aggregate Results Workgroup
Presented on: October 16, 2014
Presented at: DIA 9th Annual India Conference, Mumbai, India
Presented on: October 27, 2015
Presented at: PRIM&R Webinar
Presented on: June 17, 2015
Presented at: DIA 51st Annual Meeting, Washington, DC
Presented on: May 29, 2015
Presented at: European Forum for Good Clinical Practice Workshop, Brussels, Belgium