Returning Individual Research Results and Data: Digging Deeper into Genetic Results and Secondary Findings


Presented on: September 21, 2023

Presented at: Virtual

The MRCT Center released a series of case studies describing research stakeholder experiences of returning individual results to participants at a recent webinar in May.  Given the interest and number of questions we received, we offered three virtual “Digging Deeper” sessions to foster additional discussion and learning about topics that can be challenging to navigate. 

This webinar was the third of the three webinars in the Digging Deeper series. Megan Frone of the National Cancer Institute discussed a case about returning genetic/genomic results and secondary findings.

Returning Individual Research Results & Data: Digging Deeper into Genetic Testing Secondary Findings webinar recording

Related Resources

ACMG/AMP Recommendations for Return of Secondary Findings
NASEM Returning Individual Research Results to Participants

Case Study: Responsibly Returning Secondary Findings
May 2, 2023 webinar: Returning Individual Research Results and Data to Participants
July 27, 2023 webinar: Digging Deeper into Pfizer’s Patient Data Return Solution
August 17, 2023: Digging Deeper into IRB/HRPP Responsibilities
Return of Individual Results website