Tools
Developed on: August 2022
Developed by: MRCT Center Pediatrics Workgroup
Focus Area: Clinical Trials & Research
What is Assent?
Tools
Developed on: August 2022
Developed by: MRCT Center Pediatrics Workgroup
Related Resources
What Is a Focus Group & Why Should I Join One?
Tools
Developed on: August 2022
Developed by: MRCT Center Pediatrics Workgroup
Related Resources
Sensitive Information In Research
Tools
Developed on: August 2022
Developed by: MRCT Center Pediatrics Workgroup
Related Resources
Prioritizing Young People’s Voices in Clinical Research Part 1
Video
Presented on: February 2, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Time to Listen—Hearing from young people in clinical research
Description: Youth share their experiences receiving medical care and healthcare, and express what they believe researchers should ask young people about clinical trial participation.
Prioritizing Young People’s Voices in Clinical Research Part 2
Video
Presented on: June 28 and 29, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Assent and Consent in the Field: Culture, Context, and Respect
Description: Youth share their preferences on what doctors have communicated to and with them, and on decision making related to participation in clinical research.
Prioritizing Young People’s Voices in Clinical Research Part 3
Video
Presented on: November 29-30, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Facilitating Pediatric Medicine Development – Models of Global Cooperation
Description: Youth share what they believe researchers should tell young people about clinical trials and research. They further share their ideas on what motivates young people to get involved in clinical research.
Fair payment and just benefits to enhance diversity in clinical research
Implementing expanded COVID-19 testing in Massachusetts community health centers
Publication
Published on: July 2022
Published in: Contemporary Clinical Trials
Launch Of Equity By Design (EBD) In Clinical Research: The EBD Metrics Framework
Webinar Presentation
Presented on: June 30, 2022
Presented at: MRCT Center webinar and public launch, “Equity by Design (EbD) in Clinical Research: The EbD Metrics Framework”
Dr. Barbara E. Bierer moderated this webinar, in which MRCT Center Program Manager Dr. Willyanne DeCormier Plosky introduced the background and structure of EbD Metrics Framework and panelists Yasmeen Long (Faster Cures, Milken Institute) and Dr. Rodrigo Garcia (PPD, Thermo Fisher Scientific) discussed their experiences in testing and utilizing it.
The EbD Metrics Framework is a tool developed by the MRCT Center in collaboration with colleagues from professional, trade, academic, regulatory, and patient advocacy organizations. It is designed to advance organizational diversity, equity, and inclusion (DEI) efforts; orient users toward potential entry and follow-up strategies; and provide guidepost measures for assessing and reporting on progress. To access the tool, please visit the EbD Metrics Framework page.