For Patients and Participants

Patients & Participants Resources

The MRCT Center has developed resources with, and for, patients and participants.

Resources for the community of patients, participants and caregivers include:

The MRCT Center welcomes patients, participants, advocates, and family members who have experience related to clinical trials to volunteer in our workgroups and towards our efforts. Please contact Please include a few sentences about your experience in clinical research. 

Participant Bill of Rights

For people who want to learn more about what to expect when deciding whether to join a clinical research study.

Research Information for Young People

Informative brochures explaining clinical research and a series of International Children’s Advisory Network (iCAN) videos featuring young people from all over the world sharing their experiences of participating in clinical research.

Clinical Research Glossary

Learn more about words commonly used in
clinical research.

Individual Return of Results

A guide to help participants decide if they wish to receive individual results from a research study.

Costs and Payments

A list of questions for patients, participants and caregivers to ask study teams about research study costs and payments.

“Including Young People in Research” Toolkit

A toolkit to facilitate and support those wishing to engage and include children and adolescents in research and research-related activities.