Returning Individual Research Results and Data: Digging Deeper Webinar Series

Webinar Series

Presented on: July 27, August 17 and September 21, 2023

The MRCT Center released a series of case studies describing research stakeholder experiences of returning individual results to participants at a recent webinar.  Given the interest and number of questions we received, we offered three virtual “Digging Deeper” sessions to foster additional discussion and learning about topics that can be challenging to navigate.  

Covid-19 Clinical Research Flyers: I am a Healthy Adult: Should I Join a COVID-19 Research Study? URDU

Flyer / Tools

Developed on: February 2022 

Developed by: MRCT Center Health Literacy Workgroup

Thank you to Dr. Farah Asif and colleagues at the Shaukat Khanum Memorial Cancer Hospital And Research Centre, Lahore, Pakistan for helping us translate, adapt text, and provide these flyers in Urdu.

Related Resources

Covid-19 Clinical Research Flyers: I am Sick with COVID-19: Should I Join a COVID-19 Research Study? URDU

Flyer / Tools

Developed on: February 2022 

Developed by: MRCT Center Health Literacy Workgroup

Thank you to Dr. Farah Asif and colleagues at the Shaukat Khanum Memorial Cancer Hospital And Research Centre, Lahore, Pakistan for helping us translate, adapt text, and provide these flyers in Urdu.

Related Resources

Covid-19 Clinical Research Flyers: I am a Child with COVID-19: Should I Join a COVID-19 Research Study? URDU

Flyer / Tools

Developed on: February 2022 

Developed by: MRCT Center Health Literacy Workgroup

Thank you to Dr. Farah Asif and colleagues at the Shaukat Khanum Memorial Cancer Hospital and Research Centre, Lahore, Pakistan for helping us translate, adapt text, and provide these flyers in Urdu.

Related Resources

Covid-19 Clinical Research Flyers: I am a Healthy Child: Should I Join a COVID-19 Research Study? URDU

Flyer / Tools

Developed on: February 2022 

Developed by: MRCT Center Health Literacy Workgroup

Thank you to Dr. Farah Asif and colleagues at the Shaukat Khanum Memorial Cancer Hospital And Research Centre, Lahore, Pakistan for helping us translate, adapt text, and provide these flyers in Urdu.

Related Resources

Covid-19 Clinical Research Flyers: I am Healthy: Should I Join a COVID-19 Research Study? URDU

Flyer / Tools

Developed on: February 2022 

Developed by: MRCT Center Health Literacy Workgroup

Thank you to Dr. Farah Asif and colleagues at the Shaukat Khanum Memorial Cancer Hospital And Research Centre, Lahore, Pakistan for helping us translate, adapt text, and provide these flyers in Urdu.

Related Resources

Returning of Individual Research Results and Data: Digging Deeper into IRB/HRPP Responsibilities

Webinar

Presented on: August 17, 2023

Presented at: Virtual

Related Resources

Case Study: IRB/HRPP Responsibilities
May 2, 2023 webinar: Returning Individual Research Results and Data to Participants
July 27, 2023 webinar: Digging Deeper into Pfizer’s Patient Data Return Solution
Return of Individual Results website

Review of diversity, equity, and inclusion by ethics committees: A Delphi consensus statement

Publication

Published on: August 11, 2023

Published in: Med (Cell Press)

Description: Laura Meloney, Hayat Ahmed, and Barbara Bierer coordinated a modified Delphi process to establish consensus on recommendations for IRBs/ethics committees and institutions to promote diversity and inclusion in interventional clinical research. In this paper, they discuss the 25 consolidated recommendations across four themes.