Pediatric Research Informational Materials
The MRCT Center worked with high school and college students to develop educational brochures on various research topics. These brochures were reviewed by international youth advisory networks and are written for 12- to 17-year-olds.
Translations to other languages and adaptations to younger age groups are forthcoming.
ASSENT TO CONSENT
This brochure explains what happens when a child participating in research becomes a legal adult and is asked to consent to continue participation. This brochure was developed by youth, reviewed by young people’s advisory groups and international stakeholders, and has earned a seal of approval from the International Children’s Advisory Network (iCAN).
WHAT IS CLINICAL RESEARCH?
This brochure defines clinical research and the difference between research and medical care.
WHAT IS ASSENT?
This brochure defines assent and what young people should consider before providing research assent.
WHAT HAPPENS AT THE END OF A RESEARCH STUDY?
This brochure explains what happens after your last study visit with researchers and how they might use information they collected from you.
WHAT IS A FOCUS GROUP & WHY SHOULD I JOIN ONE?
This brochure explains what a focus group is and what you can expect if you join one.
SENSITIVE INFORMATION IN RESEARCH
This brochure explains why researchers might ask you questions about sensitive topics and how they protect your privacy
SHARING YOUR INFORMATION (DATA) IN RESEARCH
This brochure explains what data is and how researchers use your data in a study.