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Impact of Social Media on Clinical Trial Integrity
January 22, 2019 @ 10:00 am – 3:00 pm
The use of social media in clinical research carries many potential benefits—for example, it enables the creation of valuable support and communication networks for research participants. However, it also carries potential risks, including the possibility that participants may share information online in ways that permit themselves, other participants, and/or the research team to be unblinded to key aspects of the research data. These potential risks, as well as the practical approaches by which they may be mitigated, were the topic of the January 22nd meeting of the Bioethics Collaborative.
Deliverables
Projects
Meeting Summary
Publications
July 2021: Online Research Participant Communication: Balancing Benefits and Risks
May 2019: Social Media as an Ethical Tool for Retention in Clinical Trials
2017: The Use of Social Media in Recruitment to Research: A Guide for Investigators and IRBs
February 2017: Using Social Media as a Research Recruitment Tool: Ethical Issues and Recommendations