Flyers and Videos
Developed: April 2025
Developed by: MRCT Center and PHUSE
The MRCT Center is pleased to collaborate with the PHUSE Data Transparency team on materials to educate the general public on Data Privacy and Data Sharing. These materials were presented at a webinar on April 3, 2025. The recording and slides are now available on-demand here.
These infographics and videos are freely available and designed to explain how data is used and protected in clinical research.
MRCT Center-led Infographics:
English
- Infographic #1: ‘Your Data, Your Information’
- Infographic #2: ‘What Happens to Data During a Research Study?’
- Infographic #3: ‘What Happens to Data After a Research Study?’
- Infographic #4: ‘What is a Data Repository? ‘
- Infographic #5: ‘What Happens to Data if You Leave a Research Study?’
Spanish
- Infographic #1: ‘Tus Datos, Tu Información‘
- Infographic #2: ¿Qué Sucede Con Los Datos Durante un Estudio de Investigación?
- Infographic #3: ¿Qué Sucede Con Los Datos Después de un Estudio de Investigación?
Infographic #4: ¿Qué es un Repositorio de Datos? - Infographic #5: ¿Qué pasa con los datos si te retiras de un studio de Investigación?
PHUSE-led Videos:
- Data Privacy and Data Sharing in Clinical Trials – Introduction (Video 0)
- Data Privacy and Data Sharing in Clinical Trials – Importance of Clinical Trials (Video 1)
- Data Privacy and Data Sharing in Clinical Trials – What Will I Receive and When Will I Receive It? (Video 2)
- Data Privacy and Data Sharing in Clinical Trials – What Is Clinical Data? (Video 3)
- Video 4: ‘Journey of a Data Point’ – in progress
- Video 5: ‘What Is Data Sharing?’ – in progress
- Video 6: ‘What Is Data Privacy?’ – in progress
Joint Publications:
We are also thrilled to share some publications about this work:
- https://globalforum.diaglobal.org/issue/june-2023/phuses-educational-videos-on-data-privacy-and-data-sharing-in-clinical-trials/
- https://mrctcenter.org/wp-content/uploads/2024/10/6-creating-educational-materials-about-clinical-research-data.pdf
*You can learn more about PHUSE’s data transparency work here.
