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Patient-centered long-term follow-up for gene therapies aligns with ethics and science

Publication

Presented on: May 15, 2025

Published in: Molecular Therapy

Carolyn Chapman co‑authored a commentary in Molecular Therapy, Patient‑centered long‑term follow‑up for gene therapies aligns with ethics and science.”

The authors press for follow‑up models that reduce patient and caregiver burden, improve retention, and leverage decentralized methods and real‑world evidence. Achieving this vision will require sustained collaboration across disciplines and meaningful engagement with patient communities.

The article can be accessed and downloaded for free until July 4, 2025, with this link: https://authors.elsevier.com/c/1l5j85QliS8~Iv.

Chapman et al., Patient-centered long-term follow-up for gene therapies aligns with ethics and science, Molecular Therapy
(2025), https://doi.org/10.1016/j.ymthe.2025.04.040