Data sharing in the context of community-engaged research partnerships


Published on: May, 2023

Published inSocial Science & Medicine

Description: As data sharing is expanded in the context of greater community engagement in research, we must ask to whom do benefits of data sharing accrue and to whom do benefits not accrue? In an era of growing efforts to engage diverse communities in research, the impact of data sharing for all research participants and the communities that they represent requires the reassessment of the principles of data sharing, incorporating principles of community-engaged research. This article outlines these considerations and proposes new models of benefit sharing.