Tools
Developed on: August 2022
Developed by: MRCT Center Pediatrics Workgroup
Focus Area: Patients & Participants
What Is a Focus Group & Why Should I Join One?
Tools
Developed on: August 2022
Developed by: MRCT Center Pediatrics Workgroup
Related Resources
Sensitive Information In Research
Tools
Developed on: August 2022
Developed by: MRCT Center Pediatrics Workgroup
Related Resources
Prioritizing Young People’s Voices in Clinical Research Part 1
Video
Presented on: February 2, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Time to Listen—Hearing from young people in clinical research
Description: Youth share their experiences receiving medical care and healthcare, and express what they believe researchers should ask young people about clinical trial participation.
Prioritizing Young People’s Voices in Clinical Research Part 2
Video
Presented on: June 28 and 29, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Assent and Consent in the Field: Culture, Context, and Respect
Description: Youth share their preferences on what doctors have communicated to and with them, and on decision making related to participation in clinical research.
Prioritizing Young People’s Voices in Clinical Research Part 3
Video
Presented on: November 29-30, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Facilitating Pediatric Medicine Development – Models of Global Cooperation
Description: Youth share what they believe researchers should tell young people about clinical trials and research. They further share their ideas on what motivates young people to get involved in clinical research.
Covid-19 Clinical Research Flyers: My Child has COVID-19: Should they Join a COVID-19 Research Study? URDU
Flyer / Tools
Developed on: February 16, 2022
Developed by: MRCT Center Health Literacy Workgroup
Thank you to Dr. Farah Asif and colleagues at the Shaukat Khanum Memorial Cancer Hospital And Research Centre, Lahore, Pakistan for helping us translate, adapt text, and provide these flyers in Urdu.
Related Resources
Time to listen: Hearing from Young People in Clinical Research – Part 1
Video
Presented on: February 2, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Time to Listen—Hearing from young people in clinical research.
Description: Dr. Gianna “Gigi” McMillan, an academic bioethicist and MRCT Center pediatrics project member, recorded in-depth interviews with three young people from India, Spain, and the US to create this 2-part video series, Time to Listen.
Part 1: Young people share their experience in clinical research, including: what it is like when a doctor or researcher talks to them as a child or adolescent; the best ways to give children and adolescents information; and what the children and adolescents want the adults to know.
Giving Biospecimen for Covid-19: URDU
Flyer / Tools
Developed on: February 2022
Developed by: MRCT Center Health Literacy Workgroup
Thank you to Dr. Farah Asif and colleagues at the Shaukat Khanum Memorial Cancer Hospital And Research Centre, Lahore, Pakistan for helping us translate, adapt text, and provide these flyers in Urdu.
Related Resources
Clinical Research Glossary website
Project-Specific Website
In 2020, the MRCT Center launched a pilot project to develop a plain language clinical research glossary with an amazing workgroup of patient advocates and other representatives from across the clinical research industry.
The team worked together to create clinical research definitions and explanations that are:
- plain language
- understandable to a wide audience
- in line with industry and regulatory standards
For more information, please visit the MRCT Center Clinical Research Glossary website.
