Tools
Developed on: August 2022
Developed by: MRCT Center Pediatrics Workgroup
Focus Area: Patients & Participants
Prioritizing Young People’s Voices in Clinical Research Part 1
Video
Presented on: February 2, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Time to Listen—Hearing from young people in clinical research
Description: Youth share their experiences receiving medical care and healthcare, and express what they believe researchers should ask young people about clinical trial participation.
Prioritizing Young People’s Voices in Clinical Research Part 2
Video
Presented on: June 28 and 29, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Assent and Consent in the Field: Culture, Context, and Respect
Description: Youth share their preferences on what doctors have communicated to and with them, and on decision making related to participation in clinical research.
Prioritizing Young People’s Voices in Clinical Research Part 3
Video
Presented on: November 29-30, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Facilitating Pediatric Medicine Development – Models of Global Cooperation
Description: Youth share what they believe researchers should tell young people about clinical trials and research. They further share their ideas on what motivates young people to get involved in clinical research.
Covid-19 Clinical Research Flyers: My Child has COVID-19: Should they Join a COVID-19 Research Study? URDU
Flyer / Tools
Developed on: February 16, 2022
Developed by: MRCT Center Health Literacy Workgroup
Thank you to Dr. Farah Asif and colleagues at the Shaukat Khanum Memorial Cancer Hospital And Research Centre, Lahore, Pakistan for helping us translate, adapt text, and provide these flyers in Urdu.
Related Resources
Time to listen: Hearing from Young People in Clinical Research – Part 1
Video
Presented on: February 2, 2022
Presented at: MRCT Center Webinar series, Advancing International Pediatric Clinical Research: Time to Listen—Hearing from young people in clinical research.
Description: Dr. Gianna “Gigi” McMillan, an academic bioethicist and MRCT Center pediatrics project member, recorded in-depth interviews with three young people from India, Spain, and the US to create this 2-part video series, Time to Listen.
Part 1: Young people share their experience in clinical research, including: what it is like when a doctor or researcher talks to them as a child or adolescent; the best ways to give children and adolescents information; and what the children and adolescents want the adults to know.
Giving Biospecimen for Covid-19: URDU
Flyer / Tools
Developed on: February 2022
Developed by: MRCT Center Health Literacy Workgroup
Thank you to Dr. Farah Asif and colleagues at the Shaukat Khanum Memorial Cancer Hospital And Research Centre, Lahore, Pakistan for helping us translate, adapt text, and provide these flyers in Urdu.
Related Resources
Clinical Research Glossary website
Project-Specific Website
In 2020, the MRCT Center launched a pilot project to develop a plain language clinical research glossary with an amazing workgroup of patient advocates and other representatives from across the clinical research industry.
The team worked together to create clinical research definitions and explanations that are:
- plain language
- understandable to a wide audience
- in line with industry and regulatory standards
For more information, please visit the MRCT Center Clinical Research Glossary website.
MRCT Center Transitioned to the Division of Global Health Equity
As of July 1, 2015, the MRCT Center has moved administratively to the Division of Global Health Equity, under the leadership of Dr. Paul Farmer, at the Brigham and Women’s Hospital (BWH), a Harvard teaching hospital. The Division of Global Health Equity serves as an academic and research home for more than 40 Harvard and BWH faculty who are engaged in teaching, patient care and research around the world and domestically.
The integration of the MRCT Center into the Division offers a community of colleagues and a network of thought leaders globally, as well as infrastructure for program strengthening and expansion. The mission of the MRCT Center will remain unchanged and will be strengthened through this new partnership. The MRCT Center will continue to have a collaborative relationship with Harvard, including the continued involvement of multiple Harvard faculty members and student interns.
In the process of this move, the URL of the MRCT Center’s website changed to: mrctcenter.org, and our email addresses changed to @MRCTcenter.org. Web searches and emails to previous addresses will be redirected. The general email box for the center is admin@MRCTcenter.org. Our full name is now: The MRCT Center of Harvard and Brigham and Women’s Hospital.