Community-Resources

Community Resources

Welcome to the MRCT Center Community Resources! The MRCT Center launched a plain language clinical research glossary to support research understanding, access and inclusion. We are developing a suite of Pediatric Research brochures intended to provide youth a foundation for conversations with researchers and staff, their doctors, family members, and others. The MRCT Center has developed a series of COVID-19 research flyers that can help you make an informed decision about joining a COVID-19 clinical research study.

We invite you to use these resources to help you become informed and educated about being involved in clinical research. Research stakeholders can use MRCT Center resources to improve the way they recruit, consent, conduct their studies, or return results, as it is ultimately the community of potential, enrolled, and past study participants that truly stands to benefit.

The MRCT Center is a research and policy center associated with two of the world’s most respected names in healthcare and academia: Brigham and Women’s Hospital and Harvard University.The MRCT Center remains devoted to supporting ongoing efforts to reach communities that are under-represented in research.

CLINICAL RESEARCH GLOSSARY

The Clinical Research Glossary can help people who are thinking about joining a research study better understand some of the words that are commonly used in clinical research.

This glossary was developed and piloted in 2021, including the input of patients and patient advocates. The MRCT Center is planning to expand the glossary and include more words in 2022. Please use this resource to find plain language definitions and additional information to support understanding.

The Clinical Research Glossary can also be used by research stakeholders like sponsors, study teams and IRBs when they create and review communications that have patients and participants as the target audience.

PEDIATRIC RESEARCH INFORMATIONAL MATERIALS

A suite of educational materials are being developed for youth (age 12-17 and ultimately younger children as well) to address a gap in existing information. The suite of brochures is intended to provide youth a foundation for conversations with researchers and staff, their doctors, family members, and others.

The materials emphasize the voluntary nature of research and also describe the constraints of the research process. These brochures, drafted by student interns and reviewed by exiting youth advisory networks, address a range of issues such as: explaining clinical research; privacy issues; what happens to one’s collected data; explaining assent.

COVID-19 CLINICAL RESEARCH FLYERS

The COVID-19 clinical research flyers are for people thinking about joining a COVID-19 research study. These flyers are focused on different groups: patients, friends/family members, health proxies, parents/guardians, and children. They include general information to help people learn more about what to ask during the recruitment and consent process.

These materials were developed with input from patients like you through the Brigham and Women’s Hospital’s Patient and Family Advisory Committee. If you have feedback on how these flyers could be better, contact us.