{"id":24589,"date":"2021-01-19T21:41:50","date_gmt":"2021-01-19T21:41:50","guid":{"rendered":"https:\/\/mrctcenter.org\/health-literacy-glossary\/?page_id=24589"},"modified":"2023-06-22T16:04:58","modified_gmt":"2023-06-22T16:04:58","slug":"about-this-work","status":"publish","type":"page","link":"https:\/\/mrctcenter.org\/clinical-research-glossary\/about-this-work\/","title":{"rendered":"ABOUT THIS WORK"},"content":{"rendered":"

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About this Work<\/h1>\n

In 2020, the MRCT Center launched a\u00a0pilot project<\/a> to develop a plain language clinical research glossary, convening a committed workgroup of patient advocates and other representatives from across the clinical research industry. The resulting work is reflected here on this website with clear, understandable definitions and additional supportive information to foster learning and exploration being freely available for anyone to use.<\/p>\n

After significant user interest and enthusiasm, the work of expanding<\/strong> the MRCT Center Clinical Research Glossary began in 2022. In collaboration with new and former volunteers, the workgroup has been dedicated to growing this important resource for patients, participants, and caregivers, as well as the research professionals who want to communicate with the public in more understandable ways.<\/p>\n

Today the work continues, in collaboration with CDISC**, to grow and maintain this resource as one of CDISC’s global clinical research standards.[\/vc_column_text][\/vc_column][vc_column width=”1\/2″][vc_row_inner][vc_column_inner][vc_empty_space height=”96″][vc_single_image image=”28083″ img_size=”full” onclick=”custom_link” img_link_target=”_blank” link=”https:\/\/mrctcenter.org\/resource\/a-global-standard-for-plain-language-in-clinical-research-mrct-center-and-cdisc-collaboration\/”][vc_btn title=”Webinar Resources” style=”outline-custom” outline_custom_color=”#006c8f” outline_custom_hover_background=”#f2695c” outline_custom_hover_text=”#ffffff” align=”center” i_align=”right” i_icon_fontawesome=”fas fa-arrow-alt-circle-down” button_block=”true” add_icon=”true” css=”.vc_custom_1687449895729{padding-right: 4px !important;padding-left: 30px !important;}” link=”url:https%3A%2F%2Fmrctcenter.org%2Fresource%2Fa-global-standard-for-plain-language-in-clinical-research-mrct-center-and-cdisc-collaboration%2F|target:_blank”][vc_column_text css=”.vc_custom_1679681452022{padding-top: -12px !important;}”][\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row full_width=”stretch_row” gap=”35″ equal_height=”yes” content_placement=”top” css=”.vc_custom_1624990453314{background-color: #eaeaea !important;background-position: 0 0 !important;background-repeat: no-repeat !important;}”][vc_column][vc_column_text css=”.vc_custom_1625053296453{margin-bottom: 0px !important;}”]<\/p>\n

The Clinical Research Glossary Pilot: Approach<\/h2>\n

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  1. Select and define words.<\/li>\n
  2. Collect written feedback from the multi-stakeholder Development Team on plain language definitions.<\/li>\n
  3. Hold consensus conversations with Development Team.<\/li>\n
  4. Send definitions to the patient\/caregiver Review Team for written feedback and consensus conversations.<\/li>\n
  5. Finalize plain language definitions.<\/li>\n
  6. NEW CDISC public review process<\/strong>*** of plain language definitions. Click here<\/a> to learn more about how to submit comments for public review.<\/li>\n
  7. Additional supportive content developed and all information finalized for release\n